Beyond Cancer

Improving outcomes and experiences for patients and caregivers living with Chronic Obstructive Pulmonary Disease (COPD)

Project Lead: Graeme Rocker (PubMed articles)

Trainees: Joanne Young, Cathy Simpson, Margaret Donahue

Objectives: To improve our understanding of living with advanced medical diseases, particularly COPD.


Joanne Young, Cathy Simpson, Morag Farquhar and Graeme Rocker, 2009
• Attitudes to Using Opioids to Treat Dyspnea in Advanced COPD: A Qualitative Study of Family Physicians and Respiratory Therapists [PDF]


Rocker, G.M., Cook, D. (2013). 'INSPIRED' Approaches to better care for patients with advanced COPD. Clinical & Investigative Medicine, 36(3): e114-20.

Rocker, G. (2012) Storms before the calm.CMAJ, 184(12): 1397. doi:10.1503/cmaj.120196

Rocker, G., Young, J., Donahue, M., Farquhar, M., & Simson, C. (2012)
Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease. CMAJ, 184(9): e497-504.    *Free PMC article

Young, J., Donahue, M., Farquhar, M., Simpson, C., & Rocker, G. (2012)Using opioids to treat dyspnea in advanced COPD: attitudes and experiences of family physicians and respiratory therapists.Canadian Family Physician, 58: e401-7.
*Free PMC article

Goodridge, D., Lawson, J., Rocker, G., Marciniuk, D., & Rennie, D. (2010) Factors associated with opiod dispensation for patients with COPD and lung cancer in the last year of life: A retrospective analysis. International Journal of COPD, 5: 99-105.
*Free PMC article.

Heyland, D., Cook., Rocker, G., et al. (2010) Defining priorities for improving end-of-life care in Canada. CMAJ, 182(16): 747-52.    *Free PMC article.

Rocker, G. (2010) An uncertain death. CMAJ, 182(16): 1816.    *Free PMC article.

Simpson, A.C., Young, J., Donahue, M., & Rocker, G. (2010) A day at a time… Caregiving on the edge in advanced COPD. International Journal of Chronic Obstructive Pulmonary Disease, 5: 141-51.    *Free PMC article.

Goodridge, D.M., Marciniuk, D.D., Brooks, D., van Dam, A., Hutchinson, S., Bailey, P., Baxter, S., Dorasamy, P., Dumont, S., Hassan, S., Hernandex, P., Kerigan, A., Rocker, G., Wilson, D., & Young, J. (2009) End-of-Life care for persons with advanced chronic obstructive pulmonary disease: Report of a national interdisciplinary consensus meeting. Can Respair Journal, 16(5): e51-2.    *Free PMC article.

Heyland, D.K., Allan, D., Rocker, G.M., Dodek, P.E., Pichora, D., & Gafni, A. (2009) Discussing prognosis with patients and families near the end of life: Impact on satisfaction with end of life care. Open Medicine, 3(2): 101-10.

Rocker, G., Horton, R., Currow, D., Goodridge, D., Young, J., & Booth, S. (2009) Palliation of dyspnoea in advanced COPD: revisiting a role for Opiods. Thorax, 64: 635-40. doi:10.1136/thx.2009.116699

Rocker, G., Young, J., & Simpson, A.C. (2009) Advanced chronic obstructive pulmonary disease: more than a lung disease. Progress in Palliative Care, 17(3): 117-25.

Young, J., Rocker, G.M. (2009) Facilitating palliative care in advanced COPD: a unique leadership opportunity for respiratory therapists. Canadian Journal of Respiratory Therapy, 45(4): 27-9.

O’ Donnell, D., Hernandez, P., Kaplan, A., Rocker, G., & et al. (2008) Thoracic Society recommendations for management of chronic obstructive pulmonary disease – 2008 update- highlights for primary care. Canadian Respiratory Journal, Suppl A:1A-8A.    *Free PMC article.

Rocker, G., Dodek, P. M., & Heyland, D. K. (2008). Toward optimal end-of-life care for patients with advanced chronic obstructive pulmonary disease: Insights from a multicentre study. Canadian Respirology Journal, 15(5): 249-54.    *Free PMC article.

Simpson, A. C., & Rocker, G. (2008) Advanced chronic obstructive pulmonary disease: Impact on informal caregivers. Journal of Palliative Care, 24(1): 49-54.

Simpson, A. C., & Rocker, G. M. (2008) Advanced chronic obstructive pulmonary disease: rethinking models of care. Quarterly Journal of Medicine, 101(9): 697-704. doi:10.1093/qjmed/hcn087

Sinuff, T., Cook, D., Keenan, S., Burns, K., Adhikari, N., Rocker, G., et al. (2008) Noninvasive ventilation for Acute Respiratory failure near the end of life. Critical Care Medicine, 36: 789-94.

Cook, D., & Rocker, G. (2007) A communication strategy and brochure reduced the burden of bereavement on relatives of patients dying in the intensive care unit. ACP Journal Club, 146(3): 69.

Rocker, G. (2007) Defining moments: End of life care in the back of a truck. Canadian Medical Association Journal, 176: 1614-5. doi:10.1503/cmaj.070511

O’ Donnell, D., Aaron, S., Bourbeau, J., Hernandez, P., Marciniuk, D. D., Rocker, G., et al. (2007) Canadian Thoracic Society recommendations for management of chronic obstructive pulmonary disease – 2007 update. Canadian Respiratory Journal, Suppl B:5B-32B.    *Free PMC article.

Rocker, G., Sinuff, T., Horton, R., & Hernandez, P. (2007) Advanced chronic obstructive pulmonary disease: Innovative approaches to palliation. Journal of Palliative Medicine, 10: 783-97. doi:10.1089/jpm.2007.9951