Children & Youth
Palliative Care for Children and Youth with Chronic Disease
Project Lead: Gerri Frager (PubMed articles)
Objectives: To carry out qualitative research and establish population based indicators of quality end of life care relevant to infants, children, and youth.
A play resulting from a journal kept by Ed, a 16-year old with advanced bone cancer, during his last four months of life. The play was commissioned by Dr. Gerri Frager, Medical Director of the IWK’s Pediatric Palliative Care Service and Dalhousie University’s Medical Humanities-HEALS Program.
- Event Poster [PDF]
- Qualitative analysis of Ed's journal by Shauna Flavelle during her pediatric residency at Dalhousie: Flavelle, S. (2011). Experience of an Adolescent Living With and Dying of Cancer, in the Archives of Pediatric and Adolescent Medicine, 165(1), 28-32.
Jennifer Williams, 2010
• Master Thesis - Neonatal Palliative Care: Inter-Professional Communication and Collaboration
Alison Zwaagstra, 2009
• Children and Youth Deaths in Nova Scotia from 1998 to 2005 [PDF]
Alix Carter, Rebecca Earle, et al., 2011
• Breaking down silos: Building better palliative care
Jessica D. Dooley, 2007
• Infant, Child and Youth Mortality and End of Life Care in Nova Scotia
Carter A.J.E., Earle, R., Gregoire, M-C., MacConnell, G., & Frager, G. (2012) Breaking down silos: Building better palliative care. Canadian Journal of Emergency Medicine, 14(3): abstract.
Related and relevant publications
Holly R.L. Richardson, 2013
• Seeing the Arcane in the Mundane: The Spiritual as Lived by Ill Children, PhD Thesis. Dalhousie University, June 2013.
Widger, K. & Wilkins, K. (2004) What are the key components of quality perinatal and pediatric end-of-life care? A literature review. Journal of Palliative Care, 20, 105-112.