NELS research is based in Nova Scotia, Canada. The province released its "Integrated Palliative Care" strategy in the spring of 2014. In the summer of 2014, a coordinator, Cheryl Tschupruk, was hired to guide the phased implementation of the strategy. In early 2015, the booklet "Preparing for End of Life" was made available across the province. Future revisions are expected to reflect needs being identified by patients, caregivers and health care providers.
See links to details on our six currently funded research grants.
Our most recent MHA student report is by Caroline McNamee on the stage of Development of the Palliative Care Model in the Tri-Facilities area of Nova Scotia.
Our most recent publication is “Increasing our understanding of dying of breast cancer: Comorbidities and care” by Johnston, Urquhart, Lethbridge and MacIntyre in Progress in Palliative Care, available online in advance of 2016 publication.
Our most recent conference presentation is: Muise A, Carter AJE, Jensen JL, Karim S, Johnston G (January 14-16, 2016) “Estimating Palliative Support Need among EMS Patients” National Association of EMS Physicians (NAEMSP) San Diego, California
You are Invited
to engage in community outreach
Sundays, 6:30 - 8PM,
October 16 - November 9
Grace Chapel, 255 Ross Street, Halifax
Use this poster to encourage others to attend and learn together how to implement a public health approach to increasing access to advance care planning and palliative/supportive care.
We want to understand advance care planning and paliative support from the patent and family caregiver perspectives.
If you are a patient living with advanced cancer, please consider enrolling in this study.
If you are or have recently been a family caregiver for someone with advanced cancer, please consider enrolling in this study.
If you have advanced cancer and are 15 to 39 years of age, please consider enrolling in this study.
Palliative Care for the Deaf Community
NELS ICE Investigator, Victor Maddalena, looked at palliative care in Newfoundland's deaf community. One of the outcomes of the research, based on the feedback from teh Deaf community, was the need for more information on navigating the maze of terminal illness and end of life for Deaf peple (and their caregivers).
As a result, a video was created in American Sign Language (and voice) that walks through the steps of getting a diagnosis, treatment options, palliative care, death and bereavement care. (Part 1 of 5)