NELS research is based in Nova Scotia, Canada. The province released its "Integrated Palliative Care" strategy in the spring of 2014. In the summer of 2014, a coordinator, Cheryl Tschupruk, was hired to guide the phased implementation of the strategy. In early 2015, the booklet "Preparing for Death and Dying" was made available across the province. Now, even more information is available.
See links to details on our six currently funded research grants.
Our most recent funded project is led by Majid Taghavi on using operations research to plan for palliative care doctors, nurses and social workers across Nova Scotia over the next twenty years.
Another recent publication is on "Rules to identify persons with frailty in administrative health databases" in the Canadian Journal on Aging resulting from our CFN funded project.
Darcy Gillis will describe how to complete the Nova Scotia Health Authority (NSHA) Personal Directive at noon on Sunday Sept 16, 2018 at Grace Chapel, 255 Ross St, Halifax. Please RSVP to Grace.Johnston@Dal.Ca since lunch will be provided. Lunch & Learn Poster
Darcy is a spiritual care practitioner at NSHA for people with chronic lung disease. She also presents on Personal Directives each month in the Halifax area via the Community Health Team education programs.
Please be in contact with Grace.Johnston@Dal.ca if the development of Compassionate Communities in Nova Scotia is of interest to you.
Allan Kellehear and his colleagues provide a framework for the new essentials for palliative care that includes development of Compassionate Communities. They recommend the inclusion of a community development worker in collaborative primary care practices to enable social prescribing to address loneliness and isolation.
Research by Barb Pesut and Wendy Duggleby provide guidance on the potential role of lay navigators.
Hopefully, Compassionate Communities will be part of Canada's framework for palliative care.
Palliative Care for the Deaf Community
NELS ICE Investigator, Victor Maddalena, looked at palliative care in Newfoundland's deaf community. One of the outcomes of the research, based on the feedback from teh Deaf community, was the need for more information on navigating the maze of terminal illness and end of life for Deaf peple (and their caregivers).
As a result, a video was created in American Sign Language (and voice) that walks through the steps of getting a diagnosis, treatment options, palliative care, death and bereavement care. (Part 1 of 5)