Primary Care
NELS News
Research team highlights, preliminary findings from a mortality follow-back study, a history of administrative health data linkages, and a public health appraoch to end of life.
Mortality Follow Back Study
Project Leads: Frederick Burge (PubMed articles) and Beverley Lawson (Pubmed articles)
Trainee: Emily Marshall
Objectives: Our Mortality Follow Back Study will investigate approaches to go beyond our retrospective linked administrative data study design to measure needs and preferences for end of life care.
Presentations
Fred Burge, 2011 - Highlighting NELS ICE Successes
• Experience of Care during the End of Life: A Population-Based Mortality Follow-back Study [PDF]
Fred Burge & Beverley Lawson, 2009 - ICE Annual Meeting
• Unmet needs and unfulfilled wishes at the end of life: A population-based mortatlity follow back study [PDF]
Fred Burge, Beverley Lawson & Grace Johnston, 2007
• Are Family Physicians still part of the Primary Care Palliative Care team in the community? [PDF]
Posters
Beverley Lawson & Fred Burge, 2010
• Unmet needs and unfulfilled wishes at the end of life: A population-based
mortality follow-back study
Publications
Lawson, B., Van Aarsen, K., Burge, F. (2013) Challenges and strategies in the administration of a population based mortality follow-back survey design. BMC Palliative Care, 12(1): 28. *Free PMC article
Burge, F., Lawson, B., Mitchell, G. (2012) How to move to a palliative approach to care for people with multimorbidity. BMJ, 345: e6324. doi:10.1136/bmj.e6324
Sloss, L., Lawson, B., Burge, F.I. (2012) Spiritual and emotional support of primary informal end-of-life caregivers in Nova Scotia. Journal of Palliative Care, 28(3): 169-74.
Lawson, B.J., Burge, F.I. (2010). Re-examining the definition of location of death in health services research. Journal of Palliative Care, 26(3): 202-4.
Burge, F., & Lawson, B. (2008) Which cancer patients receive provincial home care services in Nova Scotia during the end of life? Journal of Palliative Care, 24(3): 224. *Free PMC article.
Burge, F., Lawson, B., & Johnston, G., Grunfeld, E. (2008) A population based study of age inequalities in access to palliative care among cancer patients. Medical Care, 46(12): 1203-11. doi:10.1097/MLR.0b013e31817d931d
Johnston, G., Gao, J., Lavergne, R., Rheaume, D., Dummer, T., & MacIntyre, M. (2008) Palliative radiotherapy: Associations with age and nursing home residency for adults dying of cancer in Nova Scotia, 2000-2004. Journal of Palliative Care, 24(3): 210.
Lawson, B., Burge, F., Johnston, G., & Grunfeld, E. (2008) Advocating for the disadvantaged at the end of life. Who should primary care be concerned about? Family Medicine, 40: Supplement 1.
Lawson, B., Burge, F.I., Critchley, P., & McIntyre, P. (2006) Factors associated with multiple transitions in care during the end of life following enrollment in a comprehensive palliative care program. BMC Palliative Care, 5(4). *Free PMC article.