- Julie Avery
- Parveen Brar
- Rodd Clark
- Jessica Dooley
- Margaret Donahue
- Jun Gao
- Jennifer Gillis
- Farhana Kanth
- Junaid Kapra
- Ruth Lavergne
- André Maddison
- Suha Masalmeh
- Caroline McNamee
- Shauna McVorran
- Andy Muise
- Patricia Murray
- Meaghan O'Brien
- Skylan Parker
- Sheri Roach
- Sarbjeet Singh
- Dorothy Wang
- Jennifer Williams
- Hillary Woodside
- Hao Wu
- Alison Zwaagstra
invited paper for the Advocate, the journal of the Ontario Society of Medical Technologists, on the relevance of palliative and end of life care research developments. For her MHA residency, Julie worked with Jan Jenson and others on the extended role of the paramedic, and also with Kristin Schmitz, Executive Director, Saint Vincent's Nursing Home, on the needs for palliative care.
|Estimating need for advance care planning for persons at end of life with cardiovascular disease.|
|Infant, Child and Youth Mortality and End of Life Care in Nova Scotia, that summarizes the work she's did while working with NELS. This early work, along with prior work of Dorothy Barnard, enabled discussions leading to support at the IWK Health Centre for other trainees (Jennifer Williams, Rebecca Earle, Alix Carter) to take on further NELS-related research projects.
|Being-Breathless-In-The-World: A Heideggerian Hermeneutic Phenomenological Interpretation of the Lived Experience of Advanced Chronic Obstructive Pulmonary Disease (COPD). Margaret worked with Graeme Rocker, Cathy Simpson, and Joanne Young on ICE Project 7. She gained qualitative research expertise from Raewyn Bassett.
|Palliative Radiotherapy: Associations with age and nursing home residency for adults dying of cancer 2000-2005. Minimum Data Set for Palliative and End of Life Research in Nova Scotia, Canada. Palliative Care Provision to Patients Dying from Cancer in Halifax and Cape Breton, Nova Scotia, Canada. Ten Years of Research on Access to and Predictors of End of Life Cancer Care, Nova Scotia, Canada|
|A Logic Model for End of Life and Palliative Care Services in Nova Scotia. In 2009, Jenn began medical school at Dalhousie University.|
|Cultural Competence in End of Life Care for Asian Indian Immigrants.|
From 2007 to 2009 she worked with Yukiko Asada on reviewing literature on equity measures for ICE Project 2. In 2008-09, she helped develop surveillance measures for NELS ICE, working with Jun Gao, Trevor Dummer, Dorianne Rheaume and Grace Johnston on access to palliative radiation. Ruth was an MSc candidate in Community and Health Epidemiology at Dalhousie University studying equity in rural health. In August 2009, Ruth began PhD studies at the University of North Carolina in Chapel Hill, and then transferred in 2010 to the University of British Columbia where she will be graduating with her PhD in 2014. Ruth worked with Jun and Grace on using CART as a statistical tool to identify low palliative enrollment subpopulations: Palliative Radiotherapy: Associations with age and nursing home residency for adults dying of cancer 2000-2005. In 2013, Ruth again worked with NELS on care at end of life in rural Nova Scotia. Her papers with NELS include: Gao J, Johnston GM, Lavergne MR, McIntyre P (2011) Identifying population groups with low palliative care program enrolment using classification and regression tree analysis. Journal of Palliative Care 27(2): 98-106
Lavergne R, Johnston GM, Gao J, Dumont S, Burge F (2011) Exploring generalizability in a study of costs for community-based palliative care. Journal of Pain and Symptom Management 41(4): 779-787
Lavergne MR, Johnston GM, Gao J, Dummer TJB, Rheaume DE (2011) Variation in the use of palliative radiotherapy at end of life: Examining demographic, clinical, health service, and geographic factors in a population-based study. Palliative Medicine 25(2):101-110
André completed his MSc in the Department of Community Health and Epidemiology. André began Dalhousie Medical School in 2010. In 2009, André joined NELS ICE to work on ICE Project 2 with Yukiko Asada on Measuring and explaining inequities in end of life care in colorectal cancer patients in Nova Scotia. His MSc thesis was on Inequity in Access to Colorectal Cancer Services along the Continuum of Care in Nova Scotia. He has two publications from this work: Maddison AR, Asada Y, Urquhart R, Johnston G, Burge F, Porter G (2012) Inequity in access to guideline-recommended colorectal cancer treatment in Nova Scotia, Canada. Healthcare Policy 8(2):71-87
Maddison AR, Asada Y, Burge F, Johnston G, Urquhart R (2012) Inequalities in end-of-life care for colorectal cancer patients in Nova Scotia, Canada. Journal of Palliative Care 28(2):90-96
He also worked on Project 8 with Judith Fisher to produce Maddison A, Fisher J, Johnston G (2011) Preventive medications at end of life. Progress in Palliative Care 19(1):15-21.
|Change Guide developed by Dr. Hsien Seow to describe the stage of Development of the Palliative Care Model in the Tri-Facilities area of Nova Scotia.|
Andy is a Master's of Health Administration Candidate at Dalhousie University who will be working in 2013/14 with NELS and Emergency Health Services (EHS) as part of his Master’s thesis, with Grace Johnston as his primary supervisor. His research will utilize 3X3 NELS data to examine the impact and potential of the EHS Extended Care Paramedic (ECP) program on Nova Scotia’s health system. His work was presented at the 2014 Montreal International Congress on Palliative Care as a poster entitled: Expanding the scope of paramedicine for palliative patients: populaton estimates from linked administrative data. It was also presented at the International Association of Cancer registries Conference in Ottawa as an oral presentation called Planning expanded scope paramedicine for palliative cancer patients using population-based linked administrative data.
|Palliative Care Provision to Patients Dying from Cancer in Halifax and Cape Breton, Nova Scotia, Canada and Ten Years of Research on Access to and Predictors of End of Life Cancer Care, Nova Scotia, Canada|
|Cultural Competence in End of Life Care for Mi’kmaq. This work led to the following publication: Johnston G, Vukic A, Parker S, (2013) Cultural understanding in the provision of supportive and palliative care: Perspectives in relation to an indigenous population. BMJ Supportive and Palliative Care 3:61-68 doi: 10.1136/bmjspcare-2011-000122|
|Socioeconomic Predictors of Short Diagnosis to Death Following Colorectal Cancer Diagnosis: A Population-Based Study using Recursive Partitioning. Her Nursing thesis supervisors were Audrey Steenbeek and Margot Latimer. She also worked with Grace Johnston, Robin Urquart and Mo Abdolell, and used data from the COR NET ACCESS grant. She presented a work-in-progress poster at the annual meeting of the Nova Scotia Hospice Palliative Care Association, and a paper is being prepared for publication.
Sarbjeet graduated from the Master's of Health Administration program at Dalhousie University in 2009. He worked with NELS and Dion Mouland, Executive Director, Oceanview Continuing Care Centre to complete his Senior Seminar on Challenges in Providing Quality End-of-Life Care in Long-Term-Care Facilities.
|Best Practices in Palliative Care for Patients with End Stage Renal Disease. The NSRP developed this paper further and used it as a background document for distribution prior to a very successful provinical meeting in May 2012 of palliative care and renal dialysis professionals from all nine district health authorities in the province.|
In 2012, Hillary commenced her MA in Kinesiology with Dr Melanie Keats; a co-investigator on the ABC-SC project. Hillary is studying the perspectives of youth and young adults with advanced cancer on the value of yoga as a form of palliative support. Hillary and Melanie have published:
H. Woodside & M. Keats. (2012) Exploring the Role of Physical Activity During Palliative Care for Adolescent and Young Adult Cancer Patients. Journal of Adolescent and Young Adult Oncology. doi:10.1089/jayao.2012.0016
Hao worked with Victor Maddalena while he was a Master's student in Community Medicine at Memorial University in St John's Newfoundland. He plans to gradute in 2014. The focus of Hao's research was perspectives on palliative and end of life care by immigrants from South East Asia.
After completing her Master's of Health Informatics at Dalhousie University in 2007, Alison joined NELS ICE as a full time Health Information Analyst in January 2008. In July 2008, Alison successfully challenged the Canadian College of Health Information Management certification examination. She holds current membership with both the Canadian and Nova Scotia Health Information Management Associations. In July 2009, Alison began as a Research and Statistical Officer - Quality with Addiction Prevention and Treatment Services at Capital District Health Authority (CDHA). Alison analyzed Vital Statistics data, prepared descriptive reports on persons dying of chronic diseases in Nova Scotia, and shared these reports with key stakeholders. Copies of her reports on renal disease, cancer, COPD, diabetes, Parkinson's and MS can be found under ICE Project 1, as well as slides and audio of a work-in-progress session she gave in 2008. While working with NELS ICE, Alison also prepared the poster Minimum Data Set for Palliative and End of Life Research in Nova Scotia, Canada. Alison's work with NELS ICE is included under ICE Project 1 and is summarized in NELS News Issue 2.