Network for End of Life Studies

Research

Find out more about NELS Interdisciplinary Capacity Enhancement (ICE) research

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Visiting Scholars

NELS hosts national and international speakers

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Presentations

Explore NELS presentation decks and research posters

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Context

NELS research is based in Nova Scotia, Canada. The province released its "Integrated Palliative Care" strategy in the spring of 2014. In the summer of 2014, a coordinator, Cheryl Tschupruk, was hired to guide the phased implementation of the strategy. In early 2015, the booklet "Preparing for End of Life" was made available across the province. Future revisions are expected to reflect needs being identified by patients, caregivers and health care providers.

Updates

See links to details on our six currently funded research grants.

Our most recent MHA student report is by Caroline McNamee on the stage of Development of the Palliative Care Model in the Tri-Facilities area of Nova Scotia.

Our most recent publication is “Increasing our understanding of dying of breast cancer: Comorbidities and care” by Johnston, Urquhart, Lethbridge and MacIntyre in Progress in Palliative Care, available online in advance of 2016 publication.

Our most recent conference presentation is: Muise A, Carter AJE, Jensen JL, Karim S, Johnston G (January 14-16, 2016) “Estimating Palliative Support Need among EMS PatientsNational Association of EMS Physicians (NAEMSP) San Diego, California



Upcoming Events

You are Invited

Thursday May 5, 2016, 3-5 PM
Tupper Theatre C

COSTaRS: Improving nurse’s
use of evidence when helping
oncology patients manage
their symptoms at home

by Dr. Dawn Stacey, University of Ottawa

Research Opportunities

We want to understand advance care planning and paliative support from the patent and family caregiver perspectives.

If you are a patient living with advanced cancer, please consider enrolling in this study.

If you are or have recently been a family caregiver for someone with advanced cancer, please consider enrolling in this study.

If you have advanced cancer and are 15 to 39 years of age, please consider enrolling in this study.

Are you a Dalhousie University graduate student, post doctoral fellow, or faculty member, or a Capital Health or IWK medical resident interested in being involved in research on care for persons at end of life? Mortality Follow-back Study data are now available for analysis. If you have a research question that could be answered by these data, contact Dr Fred Burge or Bev Lawson with your research interest.  Information on this study is available in NELS News 5.

Palliative Care for the Deaf Community

- youtube channel

NELS ICE Investigator, Victor Maddalena, looked at palliative care in Newfoundland's deaf community. One of the outcomes of the research, based on the feedback from teh Deaf community, was the need for more information on navigating the maze of terminal illness and end of life for Deaf peple (and their caregivers).

As a result, a video was created in American Sign Language (and voice) that walks through the steps of getting a diagnosis, treatment options, palliative care, death and bereavement care. (Part 1 of 5)