Research Networks

Foundation Fighting Blindness Patient Registry

The Foundation Fighting Blindness Patient Registry is a tool to help connect people living with inherited eye diseases to scientists studying these conditions. People with retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis and all other inherited forms of retinal degenerative disease are welcome to participate.

The database was first established at the Hospital for Sick Children in Toronto under the direction of Dr. Elise Héon. It has now expanded to centres across the country with enrollment sites established in Vancouver and Edmonton.

The PVSRG hosts the Halifax site for the Patient Registry under the direction of Dr. Johane Robitaille and Dr. Alan Cruess. This site serves the three Maritime Provinces.

Learn more about the Foundation Fighting Blindness at their website http://www.FFB.ca